Navigating the Shift: Life-Sustaining Care to Hospice
Lately, I’ve been reflecting on the emotional shift caregivers face when their loved ones enter hospice care. This phase is about providing comfort, making the most of precious time, and finding the right hospice organization to support us. It’s important to know we don’t have to go with the first option given to us.
Behind the Scenes + A New Free Guide for Professionals
It's been a busy time for me as I reflected on my brother's anniversary and spoke at the National Hospice and Palliative Care Conference. I emphasized the need to recognize family caregivers and launched a guide to help healthcare professionals communicate about end-of-life care. Please check it out!
So about that hospice article in the New Yorker...
This holiday season, I couldn't stay quiet about the misleading article from ProPublica and The New Yorker. Instead of highlighting the real work of over 6,000 hospices, it focused on sensational fraud cases. Hospice care is essential, and we need to understand its complexities, not just sensationalize scandals.
Precious Time
I recently created a simpler black-and-white version of the art representing "Precious Time," a phrase Bob used to describe moments before death. This time is crucial for saying what matters most, avoiding regrets, and ensuring we support one another through our grief. My own memories remind me of its significance.
True Story: What Would You Do?
A friend has been caring for her husband Fred, who suffered a stroke and is now facing kidney failure. After years of change, she's at a crossroads. Should she opt for dialysis to prolong his life or choose comfort care as they face the end together? It’s a heart-wrenching decision that many deal with.